I am Melissa and I am an adult living with Epilepsy. On August 7, 2013 I had a tonic-clonic (grand mal) seizure. After a 72 hour Video EEG (VEEG), I was diagnosed with complex partial epilepsy in my right temporal lobe. The tonic-clonic was secondarily generalized meaning it started in one area (my right temporal lobe) and then spread to the entire brain. I also have simple partial, absence and myclonic siezures. While I was diagnosed at the age of 42, it is not adult onset. I’ve been Epileptic my entire life, but it was misdiagnosed.
When I was first diagnosed I was confused, scared and lonely. I felt no one, myself included, understood what I was going through. I started researching, reading and analyzing everything I could find about epilepsy. I am dedicated to sharing what I’ve learned, my personal experiences, your experiences, and the latest news and research with anyone affected by Epilepsy.
Whether affected directly or indirectly, an epilepsy diagnosis and the stigma that comes with it are hard to come to terms with.
It is my goal, that together we can educate, raise awareness and reduce the stigma surrounding Epilepsy.
I can’t wait to take this journey with you! There are over 65 Million of us world-wide. We are Epilepsy Warriors!!!
Your Purple Friend,